Tuesday, September 13, 2011

Dementia Awareness Day. September 17th

This is Norm's videos and links to his books.  I am planning on putting some of his amazing work on here.  Please come back for more.


Here is his wife's story.  You go girl!!

Here are his books.  I have read the first one "Me and my Alzheimer's".  I would recommend these to anyone, even those that are not personally effected by the disease.  It is such a great insight to what a person suffering from Alzheimer's is feeling and goes through on a day to day basis.  Huge eye opener for me.  


  1. Sheryl,
    You posted on my blog a few weeks ago, and I tried to comment on yours, but for some reason, it wouldn't allow me to. I wanted to tell you how much I admire your willingness to write about your experiences in watching your dad's decline. I can relate to so much of it, and I feel certain my daughter can also. Even though she is older than you were when your dad was diagnosed, Shelley had a great deal of anger in the beginning, and most of it was directed at her dad who had no control over what was happening.

    She has matured and grown in her understanding of the disease, and I feel certain she has some fear about it. Thank you for being part of the DIAN study. Because of people like you, we have hope of a cure. The more that is known about this disease, the better the chances of finding a cure and hopefully a prevention.

    I look forward to keeping up with your blog. Keep writing. I'll keep writing also, so keep reading!
    Kathy Knowles

  2. I loved the blog you wrote about your journey. My husband Bob was diagnosed several years ago and has one of the familial genes for early onset AD. Like your dad he is a Christian and is at peace with his diagnosis. He tells others he did nothing to cause this- he just got the wrong genes.

    Your blog has helped me see this from a child's point of view. Our son was a senior in high school and our daughter was in college. I feel blessed that they were somewhat "grown up" and they could remember my husband as a father. Please don't be to hard on yourself for the feelings you had during your dad's illness. My BIL also has eFad, and his son at one time was very angry at his dad.

    FYI- There is a closed facebook site for us lucky rare families, as well as a message board.

  3. Thank you Kathy and Trish for your comments. It is encouraging to hear feedback from others that are going down this long road as well.
    I have felt so much better since I have been able to let all of the guilt and bitterness out. It has changed me in do many ways.
    Thank you for reading.
    Trish, I didn't know about the site on facebook. Could you email me the info? I also have a facebook page under Awareness for Early Onset if that would be easier. Thank you so much!